ME/CFS: an invisible illness

This is our less amazing adventure.

Musings of an older-born

mecfs

I don’t have a vast number of Facebook friends. Yet three of them     have  participated in different fundraisers for cancer research/support in the  past eight days.

I know lots of people who have had cancer – my husband, my sister in-law, a cousin, work colleagues, friends and friends of friends. Most of them are still alive and, apart from check-ups, living a normal life.

My daughter has had ME/CFS for fifteen years. She is among the 25% of those with ME/CFS who are “severely affected.” For her this means pain, social isolation and dependence on us for support while her brother, her friends and peers are getting on with life. She can get out occasionally and she doesn’t require tube-feeding, so she remains better off than some. But her need to move home for support has scuttled our retirement plans.

If you get a diagnosis of cancer there are…

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